The FACS Syndrome Association​

Myself and colleague Janet Williams are co-founders of this Association.  It was co-founded November 2012 in order to help and support families affected by the condition.  We have 2 offices, one based in Manchester and the other one in Blackpool.  We are there to help give advice, comfort and support to parents whose children are affected by FACS.

We work with a Medical Team to update parents on the latest facts, figures and information.  Any information needed about any of the symptoms of FACS are available to buy in booklets, and parents can join membership so they are aware of latest information and have the constant support available.

FACS can affect a child to varying degrees, ranging from Dysmorphic (unusual) facial features, Cognitive impairments, Spina Bifida, Cleft Lip & Palate etc

The Syndrome Characteristics

Fetal Valproate Syndrome

Caracteristic Facial Features

Development Delay

Gross and Fine Motor Control Difficulties

Memory Problems

Lower IQ

Speech and Language problems

Visual difficulties

Poor Muscle Tone (hypotonia)

Limb and heart defects

Spina Bifida

Incontinence

Deafness

Cerebral Palsy

Fetal Carbamazipine Syndrome

Characteristic Facial Features

Nail Abnormalities

Developmental Delay

Lower IQ

Attention and memory Difficulties

Fetal Hydantoin Syndrome

Cleft lip and/or Palate

Small size at birth

Developmental Delay

Lower IQ

Please note: not all children whose mothers have taken an AED during pregnancy will be affected.  Never stop taking your medication without medical advice.

Anti Convulsant Drugs (AEDs) have been prescribed for Epilepsy since 1912, when the first drug Phenobarbitoine was introduced.

Their are 3 main medications known to affect the fetus during pregnncy which are Phenytoin(1938) Carbomazipine (1963) and Sodium Valproate (1978)

There are another 10 main medications which may also have the same affects causing Fetal Anti Convulsant Syndrome

​Both the co-founders Emma Murphy and Janet Williams have children affected by Fetal Anti Convulsant Syndrome.  Emma and Janet shared their vountary carears with this subject working voluntaily for the Organisation for Anti Convulsant Syndrome (OACS).  Janet Williams being the founder member and working for a total of 16 years with this topic

Emma Murphy worked with Janet for 3 years and has 5 children all diagnosed with Fetal Valproate Syndrome.  They are also founders of In-FACT (Independant Fetal Anti Convulsant Trust), working with the Thalidimide Trust in order to raise awareness in Government.