The FACS Syndrome Association
Myself and colleague Janet Williams are co-founders of this Association. It was co-founded November 2012 in order to help and support families affected by the condition. We have 2 offices, one based in Manchester and the other one in Blackpool. We are there to help give advice, comfort and support to parents whose children are affected by FACS.
We work with a Medical Team to update parents on the latest facts, figures and information. Any information needed about any of the symptoms of FACS are available to buy in booklets, and parents can join membership so they are aware of latest information and have the constant support available.
FACS can affect a child to varying degrees, ranging from Dysmorphic (unusual) facial features, Cognitive impairments, Spina Bifida, Cleft Lip & Palate etc
The Syndrome Characteristics
Fetal Valproate Syndrome
Caracteristic Facial Features
Gross and Fine Motor Control Difficulties
Speech and Language problems
Poor Muscle Tone (hypotonia)
Limb and heart defects
Fetal Carbamazipine Syndrome
Characteristic Facial Features
Attention and memory Difficulties
Fetal Hydantoin Syndrome
Cleft lip and/or Palate
Small size at birth
Please note: not all children whose mothers have taken an AED during pregnancy will be affected. Never stop taking your medication without medical advice.
Anti Convulsant Drugs (AEDs) have been prescribed for Epilepsy since 1912, when the first drug Phenobarbitoine was introduced.
Their are 3 main medications known to affect the fetus during pregnncy which are Phenytoin(1938) Carbomazipine (1963) and Sodium Valproate (1978)
There are another 10 main medications which may also have the same affects causing Fetal Anti Convulsant Syndrome
Both the co-founders Emma Murphy and Janet Williams have children affected by Fetal Anti Convulsant Syndrome. Emma and Janet shared their vountary carears with this subject working voluntaily for the Organisation for Anti Convulsant Syndrome (OACS). Janet Williams being the founder member and working for a total of 16 years with this topic
Emma Murphy worked with Janet for 3 years and has 5 children all diagnosed with Fetal Valproate Syndrome. They are also founders of In-FACT (Independant Fetal Anti Convulsant Trust), working with the Thalidimide Trust in order to raise awareness in Government.